Thank you to all who joined us in fasting for our sweet baby! Your faith, prayers, and sacrifices brought happy and good news to us this week. Here's the highlights:
- A new doctor! She's older, more experienced, and said our first meeting, "I've seen many of these cases. It just takes time!" That was so encouraging after last week's pessimism from defeated-feeling doctors.
- Monday, Addie started getting tube-feedings of fat-free human milk to jump-start her stomach and intestines.
- She tolerated the initial 10 ml/day, so now she'll get 20 ml/day. She'll increase her feeds every 2 days or so as she is watched for more fluid accumulation. So far no fluid has come back into her lungs! Praying hard!!
- She pooped! Her colon is working again, and she proved it by letting her Daddy change a very messy diaper yesterday that shot all the way up her back! What a loving thing to do!
- Addie opened her eyes and looked at us for 15-20 minutes twice this week. That means the puffiness in her face has diminished enough for her to finally peel her eyes open. Pools of darkness radiate so much love and peace to us. She is so precious!!
- Her "cauliflower" ears have flattened out and look less edematous--more like ears now.
- She's looking less taut in her chest area--still puffy, but not extended to the point of tightness.
- Her genetic DNA test came back as "normal." To my untrained heart that means that there is no permanent cause for this fluid accumulation--Addie CAN heal from this!! Super Wonderful News!!
At this point, we are just watching closely to see if fluid re-accumulates. These things can cycle over and over, but we are hopeful that with all of the prayers and fasting, love and faith applied by you, our friends, that Addie will overcome this illness sooner than later.
Her dear Daddy spends much time with her to support her emotionally and spiritually. I testify today of the power of family love. Our little ones (and our big ones) NEED to feel our presence, concern, and love. Family ties are the bonds that last forever and it is never too early, nor too late, to strengthen them. Don't delay--reach out to your family today!
With much love and gratitude for all your reaching towards us-- Desi
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Awake! |
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I meet Grandma Donna. |
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My daddy is my favorite pal! |
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Testing out Grandma Jill's dress. |
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Thank you for praying for me!! |