Our sweet Adelaide is in much need of your prayers and fasting
tomorrow. Please join with us in imploring Heavenly Father to help
her fulfill her mission.
On Tuesday, a doctor told us that we need to consider the "end-game"
for her--meaning: "We've done all we can medically, so you need to be
prepared that she may never get well." Then on Friday, a Pediatric
Neurologist came and told us that Addie has "abnormal brain function"
and to "expect major developmental delays if she makes it at all".
She then asked me: "What do you hope for in this situation?"
I admit, last Sunday in writing the Addie Update, I felt despair. As
we went through this week, more disparaging news heaped upon us as
words like "seizures" phenoybarbitol" "abnormal" "nothing else to do"
"I need to tell you . . . " piled in.
But--the gospel works! Recentering my faith, I regained my hope
day-by-day. Then in that moment of intense questioning, with tears
streaming and my nose running, I answered the five medical
professionals:
"I HOPE . . . I hope that Addie can come home to us, surrounded by her
family--all of us together in one room. At the NICU, only four of us
can be here together. Earlier this week, you told me that you have
done all you can medically. Now we will see what Heavenly Father will
do. I trust in Heavenly Father. He has a mission for this little
baby, and if it is His will that she live and come home to us, she
will. If it is His will that her life ends here, then she will go home
to Him. Either way, her mission will be fulfilled, and as her parents
and family, we will support her in whatever capacity she needs until
she completes her mission on earth."
Yes--they stared at me blankly or with condescending smiles of
"okay-then--keep holding onto that 'fairy-tale'." I can't imagine a
life without God. I feel sad for those who cope with life by denying
His existence.
So--we will seek the Lord and trust in His plan. You dear friends
have been His hands through all of this. Thank you for answering our
prayers in so many small miracles as you've served us, prayed for us,
and especially kept our sweet little gal in your hearts. May you be
blessed by the Father of us all for your continued support and love.
With much hope!
Desi
