Good morning Family & Friends--
Little Addie is in the hospital once more. Her need for oxygen superseded the home equipment’s capability to help her, so we took her to the Pediatrian on Thursday. After 5 minutes, she said, “Take her down to the ER. You’re going to Primary’s.”
While they thought she had RSV, the tests came negative for both viral & bacterial infections. However, the x-ray looks like she breathed some milk into her lungs. So--at this point, she has no infection (viral or bacterial), but her diagnosis is Aspiration Pneumonia.
Will you please pray for her little lungs? She needs to either cough or absorb that bit of fluid in there in order to expand her lungs to their full strength and get her O2 needs back to a normal home range.
Meanwhile, here’s some political drama we faced at the hospital. We informed the medical team that we are using CBD oil to control seizures when asked what medications she’s on. We were told we could not use it for her at the hospital. We insisted that this is the only thing that is helping Addie’s seizures, that we are trying to get to a therapeutic dose, and that we will continue to use it. Without it, it will be difficult to get her out of the hospital as much of the lung stress we see with her is in relation to cough seizures which keep her from oxygenating well. We were firmly told that if we continued to use it, we would be kicked out of the hospital . . . Addie would stay--parents banned! NIGHTMARE!!!! INDIGNATION!!!
Additionally, there is NO other hospital in UTAH that will take children. Every child HAS to be treated at Primary’s. We could not take Addie anywhere else & be able to use her CBD. To be threatened like that when you are trying to help and advocate for your child is so emotional and so wrong. This direction came from the very top--the lawyers, CMO, etc. Our doctor bravely sided with us against the hospital administration, and told us to keep pushing. We produced our paperwork that legally allows us to use CBD oil in the State of Utah. You only get this paperwork if the doctors at Primary Children sign off on it!???!!! He took a copy back to the leadership of the hospital and we waited. Before 5 pm, our good doctor came back with a message that we can use it, but that we needed to be silent about it (so now I’m shouting it out to you! :-). Because of the paperwork, they could not legally stop us.
God is gracious and good! Here’s why: A month ago, I utterly refused to file the paperwork for my hemp certificate. I felt angry that I had to pay a bureaucratic fee and jump through all these red-tape hoops to help my child. I thought, “I just won’t speak about it, and no one will know.” An article from the Desert News said that ⅔ of patients qualifying for medical marijuana do NOT comply with the paperwork requirements but use the oil anyway. Parents I spoke with also said, “Don’t worry about it. They can’t enforce it.” Despite my entrenchment, the Spirit kept striving with me. I felt prompted three times to file the paperwork. I kept arguing with the Lord why it wasn’t necessary, trying to rationalize away the promptings and getting him to see my point of view. After working with me for 10 days, I knew I could not go against the strong promptings and remain in good standing with Heavenly Father. So, I gritted my teeth, wrote out the check, and sent in my application. As soon as the check went in the mail, a huge weight of fear lifted from my shoulders. I did not realize how burdened I felt regarding CBD oil. I recognized in hindsight that I had been under attack by the Adversary. All those chattering voices in my head ceased. My mind and heart cleared. I could lift up my head and boldly share my experiences about medical marijuana with others. No more fear energy. I immediately felt grateful for the promptings and for the Holy Ghost’s continued efforts to break through my stubborness.
“Verily, thus saith the Lord unto you whom I love, and whom I love I also chasten that their sins may be forgiven, for with the chastisement I prepare a way for their deliverance in all things out of temptation . . .” --D&C 95:1
I was chastened by the Lord in my temptation/sin to not comply with the law. I thought I just needed to submit to the crazy law to be an honest, good citizen of my state and of the kingdom of God, but He saw a lot more than I did. The paperwork became indispensable to me in enabling me to help and stay with Addie. I just have to shout out there: if you receive a prompting--FOLLOW IT. The God who sees all things truly will provide deliverance. Additionally, He will “go before your face . . . will be on your right hand and on your left, and . . . shall be in your hearts, and [His] angels round about you, to bear you up” (D&C 84:88). I have felt that this week.
Humbled once again to my core--
Desi
