Showing posts with label healing. Show all posts
Showing posts with label healing. Show all posts

Sunday, January 14, 2018

Addie Update: of Rams & Thickets

Good Sunday Morning--
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We met with the Epileptologist this week and came away with heavy hearts.  He helped us understand that Addie is in the category of ⅓ of epilepsy patients that do not respond to medication, not the category of ⅔ who do.  As he came in, I held Addie.  He asked, “So what do her seizures look like?” I said, “Come and see.”  She seized over and over in my arms throughout the hour meeting--about every minute.  After about 15 minutes of talking to us, keeping his eye on her, he said, “She has catastrophic epilepsy.”  He explained that most with epilepsy may have a seizure once a day or week or even once every two or three months, years even,  when controlled by medicine.  Watching Addie and hearing from us, “this is how it usually is . . . unless she’s asleep” brought on the awakening news.  Our hearts plummeted as the weight of what he told us settled like thick dust upon our hopes.  He said that often in cases like hers, the brain will just get to a point where it can’t function anymore--it burns out.
A delightful  children’s book/game We’re going on a Bear Hunt chants  “ . . . we can’t go over it, we can’t go under it; oh no--we have to go through it.”  From the beginning, we hoped that we could pray ourselves a miracle to heal Addie so she could grow into a normal little girl.   We hoped that the trial would be lifted--that we could go under it or over it.  Now we sing, “Oh No! We have to go through it!”
Recall that when the prophet Abraham was asked to sacrifice his son Isaac upon an altar, he walked the mountain to get to the peak, he built the altar, laid wood upon it, strapped his son to it, and then raised the knife to perform the sacrifice. In that moment--after he did all he could to obey , “the angel of the Lord called unto him out of heaven, and said, ‘Lay not thine hand upon the lad, neither do thou any thing unto him: for now I know that thou fearest God, seeing thou hast not withheld thy son, thine only son from me ’” (Genesis 22).  Abraham then looked up and hearing a commotion in the thicket found a ram caught there.  The ram took Isaac’s place upon the altar in deepest gratitude of both father and son.

About three months ago as I drove home from  IMC (Intermountain Medical Center) and after  weeks of bad news ladled upon bad news, “ I cried out, “Father--where is the ram in the thicket?” I  wanted  a ram of deliverance to show up for me and for my little Addie--so that we wouldn’t have to “go through” any more sorrow.  In the very moment of my question, the answer came: “He’s already there. His name is Jesus Christ.” My tears dried up instantly.  I’ve pondered that message over and over as the news has worsened over the months that followed.

We often think of Isaac as a symbol for the Savior, and he is. But, what of the ram?  Isaac was delivered;  the ram was not--The Ram had to “go through it”. The Savior prayed for deliverance too:  “O my Father, if it be possible, let this cup pass from me: nevertheless not as I will, but as thou wilt” (Matthew 26:39).  But--there was no ram in the thicket for Him.  He had to “go through it”. He says of the experience: “Which suffering caused myself, even God, the greatest of all, to tremble because of pain, and to bleed at every pore, and to suffer both body and spirit—and would that I might not drink the bitter cup, and shrink—Nevertheless, glory be to the Father, and I partook and finished my preparations unto the children of men” (D&C 19:18-19).

Sometimes, we just have to go through it! Even so, because of Jesus Christ, all our pain, sorrow, grief, and mourning will end.  Only The Ram in the Thicket truly had to give it all, and that crown of thorns placed upon His head prior to crucifixion surely is the powerful symbol of this truth.  I know that the Lord Jesus Christ has already taken care of Addie, of me, and  each of you.  Below you’ll see through video how He will, at some future day, do for Addie what He’s done for others in the past:  (Click on the Blue for Videos):
  • But she has seizures--that will cripple her and stop her development?  Yes, but . . .He heals those with palsy.  (Mark 2:1-12).
  • But she’s so deaf? She’ll be dumb if she can’t learn language? But He  gives hearing to the deaf and speech to the dumb. (Mark 7:37)
  • But she could die at any moment?  Yes--but He overcame death, and He raises the dead. (see videos)
  • But you still have to suffer with her for her whole life as you watch over her? But . . . He knows how to succor me. (see Alma 7:11-12).
With undying hope in Christ,
Privileged mother of little Adelaide-Lemonade

Monday, December 25, 2017

Addie Update: I am Home for Christmas!

Merry Christmas (a.k.a. in sign language) 
She's home!  Thank you to all the doctors, nurses, RTs, and staff who made this possible.  And thank you to all our friends, neighbors, family, and even strangers who have prayed her 'alive & home.' We love you!!

Onto the next mountain. . .  

--The Wightmans




 

Sunday, December 3, 2017

Addie Update: (play the theme of Star Wars right now in your head)

A long time ago in a NICU far,
far away . . .


Addie
Wars


Jedi Addie squared her injured shoulder to once again meet

her formidable foe:  Darth Ventilator.

“Hwee, hwoo . . . hwee, hwoo,” he breathed.

“Addie--join the force of the dark lung!”

“Never!” Addie cried. 

Over one week, she took deep breaths with her pink lungs and ousted Darth

Ventilator’s power over her, moving from C-pap to High-flow

to nasal cannula, proving that this jedi is ready to head for her

home planet as soon as possible.

The Emperor Electric, however, still works in secret behind the

scenes to keep her in the NICU. Flashing Addie with pulses, he

tries to keep her seizures active, unmanageable, and back

under Darth Ventilator’s and Darth Medication’s evil clutches.

While Emperor Electric continues to hide in the shadows, 

his evil power will soon come to an end under the influence

of Jedi Addie’s Heavenly Father.

Another space journey looms for Jedi Addie & her family.  Her

past battles with Stormtrooper Hydrops caused intense

damage to her ears, and her hearing is severely to

profoundly impaired. Her home planet is now on a mission

to learn new skills in sign language to ensure they can

translate English for her and to ensure

she feels welcome when she arrives.

The battle continues . . . but Jedi Addie will win the war in 

large part to the power of the true force--the answered

prayers of her family, friends, and neighbors supporting

herself and her home planet. 

Till next time . . .

May the Spirit of God be with you . . . .  

Sunday, September 24, 2017

Addie Update: Perspective

Hello Concerned Friends--

Octopus Doll from Nurse Amy to keep me from pulling out my tubes!

Well--Addie grew in all the wrong places this week.  She continues to swell up like a balloon.  Her little skin is beginning to look red or purple depending on whether we're seeing arteries or veins through her stretched out and thinned skin.   At this point, her treatment consists of symptom management.  She's received IV TPN, blood transfusions (albumin & red blood cells), steroids, diuretics, pain meds, etc.  She receives periodic x-rays to determine the amount of fluid in her lungs.  It seems to be neither increasing nor decreasing.



So--how do we manage with the disappointing progress?  Perspective!

1) We learned this week that babies suffering from hydrops have a crazy mortality rate: 75-90% of babies don't make it past a few hours, let alone days, from birth.  Addie has already beat the odds. It will take time for her body to kick in and work properly, but at least she's still alive.
Cool squish around mattress to help with pressure points from edema.

2) Addie is still at IMC. The most ill babies are transported to Primary Children's Hospital.  She's still in the moderately ill stage where she can be managed closer to home but with all the same experienced nurses and doctors.

3) I received a 4 a.m. phone call this morning! Grr!  I did  learn from the nurse practitioner, despite my grogginess,  that she works with a baby that is so swollen with hydrops that no one's seen his eyeballs for 6 weeks.  Additionally, his nose is so crinkled by the swelling that it looks like a pig nose.  We're not there!  Addie managed to briefly open her swollen eyes on Wednesday.  Saturday, she once again could pry open one eye to look at us quickly.  And her nose is still cute as a button, despite the overhanging forehead.

Check out my ear and indents from Mom's fingers!

4) Since August 9, I've been greeting the Valet man who sits in front of the hospital.  It took 4 weeks of saying "Good morning" and "See you tomorrow" before he started to acknowledge me with a nod.  By week 5, he smiled at my greeting.  By week 6, he spoke to me with a "Have a Good Weekend." I learned his name this week (Week 7) & brought him a treat.  One day as I stopped to speak to him, he asked how our baby was doing (we wear neon green NICU Parent badges).  I told him "She's struggling." He empathized with us and said that he spent a lot of time in the NICU when his daughter was born at 27 weeks.  She is now 34 with four children of her own.  He said, "A week after she was born, my wife died of a rare form of blood cancer.  We didn't know she had it.  She just died, leaving me with 3 boys and this daughter to raise. I never remarried--too busy."  I walked into the hospital very grateful for my own situation--for being alive to raise my beautiful family--for having this little daughter to minister to in her beginning days of life.  

Perspective changes everything! 

I feel so grateful to you all as you continue to pray and consider us in so many kind ways. Thank you for your thoughts, prayers, encouragement,  emails, service, and love.  

Think Eternal, 

Desi